Wednesday, January 7, 2009


The Dr's realized that my mom lost more blood than originally thought, so they gave her another transfusion today. The don't think she is bleeding internally anymore, so that is good. They expect her to be able to come home tomorrow! Yesss!

*Today (1/8/09), I was able to bring my mom home :) So happy! She is super tired, but doing well. She still had a fever this morning, so after some more antibiotics, she was allowed to leave. :) I will be leaving her with some gluten free recipes (for when she is able to stand long enough to cook), and, if she can be diligent in maintaining the diet, we might be able to find out if it increases her iron absorption as well as aiding in her digestion. I am excited to see what happens :)

Tuesday, January 6, 2009

A Gluten Free Experiment Update

I really appreciate all of the interest and suggestions many of you have had on my experiment with my mom. It really has surprised me how many helpful tips and stories you have left for me. Thank you!!

Let me fill you in really quick on how things are going. The first couple of days I was here (in Utah), my mom cheated a bit. It is to be expected of course, especially when she was brought back some Fettuccine Alfredo from the Olive Garden. Who can resist that? (I can, hehe). She openly acknowledged that she was reluctant to try anything gluten free. She admitted that she doesn't want to like anything different, or anything she isn't used to. I knew that if she would just try the things I make her, that she would like them, and she has. She has liked it all! Even the GF french toast sticks with honey instead of syrup. She was skeptical about the honey, especially because she didn't think I brought her enough to dip in, but was happy to find she liked the taste better than the syrup and she didn't need a lot of it.

Now, I wish that I could say that she has continued on with eating my gluten free food, but I cannot. Since her release from the hospital last Thursday, she has been doing unbelievably well. I cannot believe how little pain she has experienced, and although she was resting a lot, and not moving around a lot, somehow she has now had a major complication. Last night she began to hemorrhage very badly, and we had to transport her to the hospital on an ambulance. She had emergency surgery last night, and we were all worried that she may not make it through. Fortunately, she is blessed to be resting in the hospital tonight, and she is doing much better. We are not out of the woods yet, because she had lost an estimated 2 units (approx 2 pints) of blood last night and had to of course have a transfusion. The Dr is concerned, however, because her hematocrit levels are still low, and she has a fever. If her levels are not back where they should be by morning, they believe she still may be hemorrhaging, and they will have to do an angiogram to determine where she is bleeding from. In this case, she will need yet another surgery.

I don't mean to go into more detail then you may be interested in, but since this record is for me as well, I would like to keep some detail. Because she is now on a diet regulated by the Dr, obviously he has not kept it gluten free. It would be interesting to see how a gluten free diet would help her increase her iron levels that she so desperately needs. My iron levels have significantly increased, and my symptoms of anemia have virtually disappeared because of my diet. I would love to see how it would help her, but in the hospital, that is not realistic, and it would take at least a month, if not more to see results of that. Maybe I can convince her to continue eating gluten free after I leave to see what happens.

As of now, I am scheduled to return home this Saturday, so I will continue to regulate her diet as soon as she is able to come home from the hospital. Depending on what the Dr says, I may end up extending my stay. In the mean time, I will update again, and let you all know how things are going and if she is interested in trying this out for the long term.

I am so grateful that she was blessed with a successful surgery, and a competent surgeon. Hopefully in the future, we can find a way to increase her quality of life, possibly with a gluten free diet, if she chooses to do so :)

Thank you all, again, for your support, stories, and suggestions! It means a lot to me, and my mom loves to read what everyone is saying!

Saturday, January 3, 2009

My Mom: A Gluten-Free Experiment

Right now I am in Utah taking care of my mom and grandma after my mom's recent surgery. My mom is caretaker for my grandma, so it is important that someone be here to take care of them. My mom has quite a number of health problems, and I really worry about her eating habits. After my Celiac diagnosis, my mom was tested as well, on my recommendation, with negative results. It confuses me that she has the same symptoms that I had, but was not diagnosed with it. I especially worry because her symptoms are what caused her to need this very invasive surgery in the first place. hmmm.....

After reading a lot of your stories of negative diagnosis, but positive results with the gluten-free diet, I am excited to see what happens after 10 days of feeding my mom (and grandma) gluten free. My grandma still eats her bread, but my mom pretty much eats only what I give her. And since I am the one cooking, she gets what I make :) (My how the tables have turned!) I hope this will help her, and that she will be able to learn how to eat healthier, and to make healthier lifestyle choices.

I'll keep my blog posted for myself and for those of you who might have an interest :)

Wish me luck! (Oh, and my mom is doing pretty well after her surgury!)
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